Long story short, Emma's joint inflammation never went down all the way and in January we found that the dilation in her heart arteries had gotten worse. What to do? The docs weren't sure why she still had inflammation and nobody was doing anything to help it go away. Bill and I did research and found a doctor (on the Kawasaki Foundation website) who was in San Diego , CA and specialized in Kawasaki Disease. We quickly got in to see Dr. Burns, who immediately retreated Emma in the hospital in CA.
Since that hospital visit (Jan. 31st) Emma has been a new girl! The joint inflammation and inflammatory arthritis had finally gone down to normal, the first time since November!! We continue to see a local cardiologist to monitor Emma's heart, which is still not normal. It could take several months for Emma's heart to get better. I say normal, but Emma's heart will never be "normal" again. We hope for close to normal. As for now, life is looking good for Emma. She is happy and full of energy once again.
WE LOVE EMMA!!!
18 comments:
What a cutie!! Glad to hear things are doing better!
she is adorable! so glad she is on the mend. and whoohoo for you good job being your own advocate and for Emma! sometimes it totally sucks but she is getting better. and that is awesome! hugs for you! i know it's been tough. and hugs for Emma! so glad she is happy again.
i am so glad she is doing better...glad i got to talk to you yesterday ;)
Poor little thing! I am so glad you have finally gotten your little girl back to almost normal. It is always worse to deal with their pain then your own, isn't it? She looks great.
Yay! I'm so happy to hear that she is doing better. :)
I'm glad to hear that she is doing better. She is such a cute, sweet little girl! Love you guys!
Love the picture & happy to hear things are improving. Emma is in our prayers!
Yeah I am glad she is doing better! Kids are such a joy and they are too scary sometimes too! She is so cute!
hello! it has been years. just came across your blog... here's to hoping that your cute little one has a full recovery. cute family you have.
Way to go you guys! We love you and miss you! Glad to hear she is doing better.
I'm glad that she is feeling better! Love the cute picture of her.
I'm so glad that she's doing better.
That must be such a relief!!
Such a sweet girl, she is always in our prayers.
We love Emma dearly! We are praying for her safe recovery and wishing you all the best. Much love!
Lots of love! Glad she is better. She has such a great smile.
Hey Angela! It's Amber Jarvis (Houston) Just wanted to say that i'm happy that emma is feeling better! She is in me and Josh's prayers. Check out our blog somtime, Braiden is getting so big!
I'm so happy to here she is doing better. I always see you from a distance at church, and I've been meaning to call and see how she is doing. Call me if you ever need help with anything!
Cute family...I am checking out your blog. I am glad I got to know you at bunko last night.
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